![]() If they won't I'm going to pay it out-of-pocket for co-infection testing at Igenex. It is just too common to get back a test that shows a false negative, sadly.ĮDIT: Now that I've read others' experiences with LabCorp being seemingly unreliable (in my humble opinion) I am going to see if insurance will cover more testing for co-infections through Stony Brook Labs. It is also vital to have a doctor who is Lyme Literate and can recognize symptoms of it in the absence of a positive test result. What stands out to me from my experience is that some labs must have more sensitive testing procedures than others. Only 2 weeks on meds and dizziness is almost completely gone, walking and even running are doable now. I will update this response and create an actual "signature" once my tests are complete. This doc also requested more Lyme testing through Igenex Lab in CA. Fortunately, they found no co-infections but they did find the gene mutations I posted questions about today on the forum. New doc (the LLMD) ran 19 more tests through LabCorp (since I told him we'd already used Stony Brook). Took the test results with me from the last doc. : Fourth test, fourth doc-this one recommended by others who've seen him-an infectious disease specialist and LLMD. I am sure this has been an "active infection" all that time, and is not a recent infection.) Very dizzy & nauseous, having trouble walking, but thrilled to know what is wrong with me!! (My symptoms have been basically the same for 30 years, but getting much worse in the last 5 years. This interpretation should be changed throughout the field of medicine to "active" infection. The two bands on the IgM were enough to say that I am positive by CDC standards, and indicates a "recent" infection. This came back POSITIVE!! It showed 23 kDa & 41 on IgM and just 58 on IgG. She also ran a Western Blot test through Stony Brook Labs, NY. (In the meantime I came back to this HealingWell forum for another referral, this time asking for recommendations for an LLMD who accepts insurance.) She ran the PCR and the C6 Peptide Abs through ARUP Labs, UT. I waited for my results from this doc, hoping she would have to eat her words. She dismissed the 23 kDa positive result from the last doctor's test as "insignificant". ![]() She was quite attentive but at the end of an hour interview dismissed all my symptoms as me being "an overachiever who has migraines from stress coupled with a sleeping disorder". : Third test-this time a round of 3 tests-with third doc, a neurologist and VERY well-renowned specialist in Lyme (again, I learned the hard way that she is not an LLMD). I couldn't go because he doesn't accept insurance. The doc was kind but dismissed this result as something I may have had in the past, possibly no longer had, said it was outside his area of expertise, and referred me to an infectious disease/Lyme doctor. Western Blot came back with just 23 K-Da positive. : Second test, second doctor, a highly regarded neurologist and Lyme specialist (but NOT an LLMD), sent blood samples for Lyme & co-infecton testing to ARUP Labs, UT. They ran a full health workup (thyroid, metabolic panel, STDs, etc., PLUS the Western Blot)-every single test came back NEGATIVE. Blood work was run through Sunrise Medical Labs, NY. ![]() : First test with first doctor, a general practitioner. I copied this from my other response to a different post. I'd bet most people on this forum are going to say save yourself some time and request a test through Igenex Labs. It is a part of voluntary service provided by the American Society for Clinical Laboratory Science.For me, accuracy in diagnosis seems to be more about which lab runs the test and who is interpreting it. A laboratory scientist will answer your question. It is useful, if there is no answer on your question on the web site. In addition, you can use a special form to ask the question. In "common questions" tab you will find answers on the most common questions. There you will find the most detailed and full information regarding lab tests. Site associated with The American Association for Clinical Chemistry (AACC) for better understanding of tests. Screening for the next conditions: Lyme Disease, Meningitis and Encephalitis Understanding of Lab Tests Results Lyme Disease, Western Blot Lab Test Short Info
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